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Thursday, 5 September 2019

Chronic Fatigue Syndrome-The Way CFS Can Change Your Lifestyle .

The Way CFS Can Change Your Lifestyle .

In many ways, a diagnosis of CFS can totally change your lifestyle. Even before your diagnosis, the changes might not be so great at first because you don’t know what’s wrong or what to do. It can be insidious. You may find that you’re drinking increasingly coffee, eating more sugar, and even taking illicit drugs to stay active. But, you can take charge and make good lifestyle changes that will help even if it won’t cure you.

Learn to Pace Yourself – Understand that some days you’ll have more energy than others, but that isn’t an excuse to overdo it. Be aware that you simply cannot do what you used to do. Start with the basic needs of life, and work toward being able to get those done, such as cleaning your house and bathing. These are more important than going for a run.

Changing Your Job – This may be the hardest change. But if you have a physically demanding job, you may find that you simply can’t keep doing it. You may need to seek retraining, or you may (depending on your age) determine that you need to seek out disability. At least in the USA, CFS is covered under the Americans with Disabilities Act and your job needs to make certain concessions, but you also still need to perform the main aspects of your job to keep it.

Learn to Eat Right – Eating right for you may be different than what it means for someone else. Find the right diet for you by starting with an elimination diet. This will remove foods from your diet and you’ll find out if you feel better. Be willing to try different diets for 30 days at a time to find out if they help. You can’t go wrong eliminating processed food and junk.

Change How You Exercise – If you were accustomed to exercising differently than you can now, understand that you can still do something. You can do water exercises, a softer yoga practice, and walk instead of high-impact workouts and movements that exert more energy than you have. And there are, sadly, some people who have CFS so badly that they really cannot do any type of exercise. Work with your medical professionals to know what will help you best.

Learn to Love Yourself – One of the most important aspects of CFS that will help is to learn to love yourself. It’s frustrating to have a condition that is not well researched and is so misunderstood. But you know what’s real and what’s not. Demand people respect you and ask for what you need.

Let Go of Unsupportive People - It’s so hard to accept when you find that there are people in your life that really don’t support you. Whether they’re doctors, or your spouse, or children, or family and friends, it can happen. But if they still don’t "believe" you or they are judgmental and cruel even after you’ve asked for what you need, you may have to let them go from your life so that you can take care of yourself.

Don’t be afraid of change, even if your family and friends don’t understand. Find professionals that are supportive and do what you need to do to help yourself. You are the best arbiter of your own health. You’re also the best advocate you have. If you don’t have CFS but you know someone who does, you can be a support system for them in a world that may not understand and thinks that CFS isn’t real.


Outlook for CFS Sufferers

Right now, there is no cure for chronic fatigue syndrome. But, there are enough people diagnosed now that it’s on the radar of professionals, and it is being researched more. Whenever something isn’t really that common, it’s harder to fund research. But, there is research happening, if under different names. Some of the names across the country that CFS has is:

Myalgic encephalomyelitis (ME)
Post viral fatigue syndrome (PVFS)
Akureyri disease
Benign myalgic encephalomyelitis
Chronic fatigue immune dysfunction
Chronic infectious mononucleosis

Because of all the different names, you may have CFS but it may have been called something else by your doctor. Every race is equally susceptible to CFS, as are different sexes, but right now it’s mostly diagnosed in females, and African Americans and Native Americans seem to have it at higher rates.

People who can be diagnosed often find that they can live with the condition with a support system that accepts this condition as real. Being under the care of a caring doctor, physical therapist, and a knowledgeable psychological professional who knows the condition is real but helps you deal with it in realistic ways, is helpful.

This is a condition that will need to be managed for a lifetime. You’ll have good days and bad days. It’s good to use every resource that you have including:

Medical doctors
Physical therapists
Exercise therapists
Dieticians
Cognitive behavioral therapists

Plus, learning to pace yourself is essential. Pacing yourself is the ability to accept your condition and not overdo it just because you feel good today. Pacing yourself while also paying close attention to how you feel and other health issues you may have often helps a person cope with the condition. Learning to deal with other conditions helps too.

For example, if you’re having issues with drugs, weight issues, other health concerns and so forth, it’s important to understand that it’s not all caused by CFS although it may have manifested itself because of your condition - especially when it comes to drugs and self-medicating. It can still be treated on its own, which will help with your overall health.

The important thing is to get started treating yourself better right now, even before you’re officially diagnosed. You can start with diet, hydration, pacing yourself, and trying to live as healthy of a life as possible. Self-love can go a long way when those around you seem to not understand.

If you know someone with this condition, offer your support to help them in some way. There is so much you can do to really help. So many people say they’ll help but never do. Bringing over dinner, helping fold laundry occasionally, and helping with basic life care can go a long way, as can agreeing to go for walks and be a diet friend.

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